Thursday, July 09, 2009

I Don't Want an HIV Test

MY DRUGGIEWORKER is on at me to get tested for HIV and hepatitis. I really don't want to get it done. I was negative last time. She doesn't think I have HIV (and remarked she thinks this is distinctly unlikely, I don't "look" like it either). But she believes hepatitis C might be a possibility because I'm so exhausted so much of the time.

Hepatitis is a "retrovirus" just like HIV. Retroviruses, as far as I understand, alter their genetic coding like the twists of a rubic's cube between generations, which is why it's so very tricky to make vaccines against them. Like HIV hep C is transmitted most "effectively" via blood-to-blood contact (hence the connexion with IV drug abuse). Unlike HIV, the hep C viruses are extremely hardy and are thought to be able to survive for months outside the body.

In the minds of the general public it's "dirty" (used) needles that spread such infections. In actuality hepatitis is said to be more likely spread via shared spoons. The microscopic viruses pass from the end of a reused needle into the drug solution and from here find their way into the myriad micro-scratches that lace the bowl of any drugs spoon, no matter how "new". It's here, in these scratches that hep C is thought to congregate and pass on and on...

... it is also suspected that hepatitis C can spread via used tourniquets (that could have micro-scabs all over them, even if they look clean) and other shared drug paraphernalia, including the citric acid or vitamin C European heroin users add to the mix to break down brown Afghan heroin.

On top of this, the testing nurse, who I've spoken to, says she knows cases who have NEVER INJECTED AT ALL ~ but caught the hep C virus most probably by sharing crack pipes. Tiny cuts or burns on the lips allow the virus in... and wahey.

In most cases hep C remains asymptomatic most of the time. When symptoms do manifest, they tend to be along the lines of constant fatigue, "brain fog", run-down-ness and depression. A very similar picture to the chronic fatigue syndrome I got diagnosed with over 15 years ago. So I really don't want hep C on top...

In a smaller number of cases, about 10-20% hep C leads on to severe liver damage and cirrhosis. In a smaller percentage, about 5% liver cancer results.

I know someone who is walking around today with less than half of his original liver as cancer ate a chunk out of it and surgeons cut a chunk more. He's the only person I know who's had interferon combination therapy to kill of the virus ~ and it worked! None of this is anything you'd go through voluntarily. After weekly "therapy" he said he could barely get out of bed for the first four days...

I have had at least four "blood bourne virus" tests, covering HIV, hep A, hep B, hep C and syphilis. Each one so far has been negative for everything, thank God. I don't know, am I being childish? I just don't want to be tested again, at least not right now. I also have reservations about just how "confidential" the results might be. Considering that even in the supposedly anonymous GUM clinic where you're encouraged to give a name "you can remember" with your real date of birth (for ease of memory, though I always made one up). Security cameras film your face on entering and leaving... Just how anonymous is any of this anyhow? Excuses, excuses I know.

I basically don't want the test...


ILLUSTRATIONS: top and bottom = HIV virus; middle = heptatitis C virus

17 comments:

  1. I think you should probably get the test done despite it being such a pain in the ass. Always a good idea to keep on top of things. I'm glad the other testing all turned out negative.

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  2. Gleddy,
    It's your life. Do what YOU want to do.

    Love,

    SB

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  3. If I were you I would get the test.

    My Mom's uglier half got Hep C and took Interferon with cast it into remission. When my Dad had brain cancer they gave it to him as well, didn't work.

    The previous comment is right, it's your life, do what you want to do.

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  4. Now the thought's been put in your head, will it worry you anyway? I tend to go down the blissful ignorance route myself, but if I found myself looking at every time I was tired or had a headache as if it might be a symptom, I'd probably take the test. Fair enough for her to raise the possibility, but I don't think she should now go on about it to you.

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  5. I'm of the mind I'd rather know than not. If you have the test and it rules out Hep C and HIV you'll be relieved won't you?

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  6. I would want to know what was causing the crappy feeling. If it were me, I'd get the test.

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  7. Why would you worry? Do you share needles or spoons? It's just a test. Get it done. The worst thing about being positive is that you can pass it on to someone else and that's not fair.

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  8. Well test or no test, I hope you are Hep C free.

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  9. I would get the test just to show you are cooperative. You seem to have a heap of resentment about everything they ask of you. It may seem pointless but they will try more to help you if you are doing your part. If you don't want the help then forget it.

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  10. I think you already know that you should have the tests done. So i will cheer you on to get it done.

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  11. It would be stupid of me to tell you not to get the test done. I'll tell you that I understand not wanting to get it done. I understand it VERY much..

    My aunt has hep c.. She got it from her ex husband. she's doing okay.. You honestly wouldn't know she has it unless she told you..

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  12. Thanks folks. I will think about it ...

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  13. Well, whatever you decide, Gleds, I hope you haven't got hep C. It's not very pleasant...

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  14. i think I'd probably get the test - better to know and get treated. But i understand why you don't want to....

    life, eh? a combination of not enough choice and too many choices

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  15. I'm not sure I want to do it NOW... whatever I decide.

    For one thing it makes a total mockery of "confidentiality" if my worker's pushing me into the test!!

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  16. Urgh, they're ugly little monsters! How long ago did you have the last hep c test? Maybe if you're always tired you should have it done? But, as you say, you were diagnosed with chronic fatigue syndrome so maybe not. I'm not much use! I'm sure you'll make your own mind up.

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  17. The last test was about 5 years ago.

    I'm thinking of changing my mind and getting it done anyway...

    I just didn't think it was at all confidential getting it done against my own name though she assures me this is not the case I'm not at all sure...

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